2012-05-19T07:47:25-07:00 http://forum.mslog.com/ Lussumo Vanilla & Feed Publisher http://forum.mslog.com/comments.php?DiscussionID=21&Focus=49#Comment_49 2011-08-14T20:23:23-07:00 2012-05-19T07:47:25-07:00 Hunt1102 http://forum.mslog.com/account.php?u=46

My wife has MS and has been living with it for 5 years. The emotional part takes a toll on her more then the everyday glitches, or (short circuts) . We have been having problems and was wondering if ...

http://forum.mslog.com/comments.php?DiscussionID=19&Focus=47#Comment_47 2011-06-17T08:07:05-07:00 2012-05-19T07:47:25-07:00 rleafmslog http://forum.mslog.com/account.php?u=1

I would call your local chapter of the MS Society or MS Association for suggestions.

http://forum.mslog.com/comments.php?DiscussionID=19&Focus=46#Comment_46 2011-06-16T19:34:28-07:00 2012-05-19T07:47:25-07:00 chrissie http://forum.mslog.com/account.php?u=41

My sister (age 52) is quickly approaching the need for assisted living. I can't bear the thought of her going to a nursing home with folks in their 80's and older. I don't know where to begin ...

I don't know where to begin looking. Any thoughts?
Chris]]> http://forum.mslog.com/comments.php?DiscussionID=18&Focus=45#Comment_45 2011-02-14T12:24:56-07:00 2012-05-19T07:47:25-07:00 ms2002 http://forum.mslog.com/account.php?u=40

I have fare ups every single time the weather changes--example when you go to 35 degrees up to 56 in one day, am I alone?

http://forum.mslog.com/comments.php?DiscussionID=18&Focus=44#Comment_44 2011-02-14T12:22:41-07:00 2012-05-19T07:47:25-07:00 ms2002 http://forum.mslog.com/account.php?u=40

Does anyone in the ms world, have pain in their tail bone like me?

http://forum.mslog.com/comments.php?DiscussionID=17&Focus=43#Comment_43 2009-08-26T07:51:30-07:00 2012-05-19T07:47:25-07:00 rleafmslog http://forum.mslog.com/account.php?u=1

Hi Barbara. Talking to others about MS is a great thing. There are many ways to do that. Are you a member of the MS Society? Many chapters have active self-help groups where you can meet and talk to ...

MSWorld where there are high activity chat rooms and message boards.]]> http://forum.mslog.com/comments.php?DiscussionID=17&Focus=42#Comment_42 2009-08-25T11:59:36-07:00 2012-05-19T07:47:25-07:00 bmobarak http://forum.mslog.com/account.php?u=33

Hi, I live alone and need someone to talk to about my MS. I have had it for many years but did not know it. I was diagnosed in 2008. Now my doctor advises that I apply for diability benefits and ...

Barbara]]> http://forum.mslog.com/comments.php?DiscussionID=15&Focus=40#Comment_40 2009-02-03T13:03:19-07:00 2012-05-19T07:47:25-07:00 Medici http://forum.mslog.com/account.php?u=14

Would you be interested in taking a short 5 – 10 minute multiple sclerosis (MS) survey? Your input can help the MS community and medical research. This survey is anonymous, but should you choose ...

https://www.surveymonkey.com/s.aspx?sm=d9S1dfLWQOqhL_2f9O_2fi8Ohg_3d_3d

We welcome your insight and we appreciate your feedback!]]> http://forum.mslog.com/comments.php?DiscussionID=5&Focus=39#Comment_39 2009-02-03T02:11:19-07:00 2012-05-19T07:47:25-07:00 TerryR http://forum.mslog.com/account.php?u=25

Taking care of a person who has MS is challenging. If you have a loved one at home and you find the care quite taxing, you may want to consider in-home support services. A team of medical staff ...

Taking care of a person who has MS is challenging. If you have a loved one at home and you find the care quite taxing, you may want to consider in-home support services. A team of medical staff provide infusion treatment and care for MS patients at home. This avoids costs of hospitalization and is covered under many health insurance plans. Try this site http://www.americanoutcomes.com/multiple-sclerosis-treatments.php]]> http://forum.mslog.com/comments.php?DiscussionID=1&Focus=38#Comment_38 2009-01-13T12:03:09-07:00 2012-05-19T07:47:25-07:00 KWAL http://forum.mslog.com/account.php?u=24

Greetings, While a group of friends were visiting the father of another friend in a nursing home we met a young man, named Alan with MS. He seems so young to be in a nursing home, I'd say around ...

While a group of friends were visiting the father of another friend in a nursing home we met a young man, named Alan with MS. He seems so young to be in a nursing home, I'd say around 40, with all the other residents well past 60 and beyond. Alan is in a wheel chair and has limited use of one arm/hand. I only know a little about Alan's background but it seems he really doesn't have anyone to advocate for him. What resources are there for Alan? Where can we look? We are in western Kentucky. I do know he has been homeless in the past so outside of a teenage son, I don't think there is anyone else who visits, or looks after Alan. He is in dire need of friends. This nursing home is typical I'd say, under staffed, under financed, under furnished. As you may know, nursing homes can be very depressing places. Alan, at such a young age feels like he has no purpose, so wrestles with depression. Our small group of friends want to help Alan. He feels scared and hopeless. He is loosing the use of the one hand he can still use. What can we do?
Thanks You
KWAL]]> http://forum.mslog.com/comments.php?DiscussionID=14&Focus=37#Comment_37 2008-11-22T10:43:20-07:00 2012-05-19T07:47:25-07:00 InjunJoe http://forum.mslog.com/account.php?u=23

Hi....A few weeks ago I lost my wife to MS after a long battle. I have started a scholarship fund in her memory that will be given to a student that has a parent or guardian with MS...or a student ...

I was hoping to pass this information along to anyone that might benefit from it. It is called The Elaine Chapin Memorial Scholarship and anyone that would like an info sheet and scholarship application would simply need to email me and request one. The email address to make the request is elainememorial@sbcglobal.net

If you have any questions, please let me know. I appreciate any help in getting the word out on this scholarship.

Thanks,
Joe Chapin
St.Louis, MO]]> http://forum.mslog.com/comments.php?DiscussionID=13&Focus=36#Comment_36 2008-11-19T08:03:05-07:00 2012-05-19T07:47:25-07:00 proudmutt http://forum.mslog.com/account.php?u=22

i hope to find others to share info with. i have many questions and unusual problems. i am interested in helping others with what i have found in my own research. my Dx of "progressive ...

my Dx of "progressive MS" was handed me in summer '04 when i landed in a wheelchair with a spinal injury.

i am fascinated w/ assistive technology, particularly adaptations i can make at home and pertaining to in the home. many i hope to publish online when the "bugs" are worked out.

hoping for a fruitful participation, proudmutt]]> http://forum.mslog.com/comments.php?DiscussionID=12&Focus=35#Comment_35 2008-11-13T23:11:23-07:00 2012-05-19T07:47:25-07:00 ablegaitor http://forum.mslog.com/account.php?u=21

I would like to inform you of a unique “walking stander” which allows people with paralysis walk independently. The standing frame has been taken to another level by making active rehabilitation ...

Medical benefits include the prevention of numerous complications that can develop in people with limited mobility, such as degenerative changes in the cardiovascular system, osteoporosis, increased risk of coronary disease, venous stasis, muscular atrophy accompanied by contractures involving multiple joints, respiratory problems etc.]]> http://forum.mslog.com/comments.php?DiscussionID=5&Focus=34#Comment_34 2008-11-08T13:17:49-07:00 2012-05-19T07:47:25-07:00 ann cappel http://forum.mslog.com/account.php?u=20

I had a baclofen pump implanted almost 2 years ago. It takes a while to ramp up the dosage, but it is one of the best things I have done to enhance my life with MS. I have always experience extreme ...

I am quite thin, so the pump is visible. That bothered me at first, but it is mostly easy to hide. I do consider it when I buy clothes.
My present intrathecal "cocktail" includes baclofen, bupivicaine, clonidine, and morphine. Tiny amounts are needed because it goes straight to the spinal cord. This really reduces side effects.
Good luck!]]> http://forum.mslog.com/comments.php?DiscussionID=11&Focus=33#Comment_33 2008-10-09T13:51:12-07:00 2012-05-19T07:47:25-07:00 rleafmslog http://forum.mslog.com/account.php?u=1

I'm not sure whether there has ever been a study on a link between TSA amd MS. It is fairly unlikely as such a combination is quite rare.

http://forum.mslog.com/comments.php?DiscussionID=11&Focus=32#Comment_32 2008-10-09T07:51:09-07:00 2012-05-19T07:47:25-07:00 bcrescimanno http://forum.mslog.com/account.php?u=19

I was wondering if there was any research done on the correlation or connection of (TSA) - Tourettes and MS? My 22 year old daughter was recently diagnosed with MS. No one in the family has ...

My 22 year old daughter was recently diagnosed with MS. No one in the family has ever had it.
From an early age her one eye would blink more often. When she would sit and watch tv, she would make vocal sounds and twitch her head from straight up to one side. At times, she still does these things, but she is more aware of it now.
(The eye twitching is involuntary) I always suspected that she had a mild case of tourettes but she was never formally diagnosed...if there is such a thing! She also has a mild case of ADHD and can be obsessive about her decisions...making them or having made them.... also common in TSA.
Thank you for your input.
Beth]]> http://forum.mslog.com/comments.php?DiscussionID=10&Focus=31#Comment_31 2008-10-08T14:43:09-07:00 2012-05-19T07:47:25-07:00 rleafmslog http://forum.mslog.com/account.php?u=1

Survey Link

Survey Link]]> http://forum.mslog.com/comments.php?DiscussionID=10&Focus=30#Comment_30 2008-10-08T07:57:41-07:00 2012-05-19T07:47:25-07:00 Medici http://forum.mslog.com/account.php?u=14

We're doing some research to understand the journey one might take from their first symptom(s) of MS, to the time they visit a doctor, and eventually if/when they begin treatment options. If you ...

Thanks for your help! Here is the link to click on or copy and paste into your browser:

https://www.surveymonkey.com/s.aspx?sm=biO8uU2lJ8ksAhrFncjciQ_3d_3d]]> http://forum.mslog.com/comments.php?DiscussionID=5&Focus=29#Comment_29 2008-10-08T06:26:11-07:00 2012-05-19T07:47:25-07:00 Angflood26 http://forum.mslog.com/account.php?u=18

Has anyone had experience with a baclofen pump for ms. was it good or bad.

http://forum.mslog.com/comments.php?DiscussionID=9&Focus=28#Comment_28 2008-04-12T14:00:10-07:00 2012-05-19T07:47:25-07:00 rleafmslog http://forum.mslog.com/account.php?u=1

To take survey click on survey

survey]]> http://forum.mslog.com/comments.php?DiscussionID=9&Focus=27#Comment_27 2008-04-12T07:30:12-07:00 2012-05-19T07:47:25-07:00 Medici http://forum.mslog.com/account.php?u=14

We'd love to have your opinion on MS materials we're creating about an upcoming multiple sclerosis clinical trial. This should take no longer than 5 minutes and we welcome your input! We’d like to ...

http://forum.mslog.com/comments.php?DiscussionID=8&Focus=24#Comment_24 2007-12-02T16:24:22-07:00 2012-05-19T07:47:25-07:00 rleafmslog http://forum.mslog.com/account.php?u=1

Each month MSlog forum is giving away selected titles from the recommended category of the shop.mslog bookstore. To qualify you just need to become a registered and active poster, then place an ...

bookstore.

To qualify you just need to become a registered and active poster, then place an entry
here.

Good Luck!]]> http://forum.mslog.com/comments.php?DiscussionID=5&Focus=18#Comment_18 2007-10-19T08:53:11-07:00 2012-05-19T07:47:25-07:00 rleafmslog http://forum.mslog.com/account.php?u=1

If a clinic specializing in the treatment of MS is located nearby and he is able to access their services that would be well advised. These clinics track hundreds, even thousands of cases of MS and ...

List of MS clinics here]]> http://forum.mslog.com/comments.php?DiscussionID=5&Focus=17#Comment_17 2007-10-16T07:27:41-07:00 2012-05-19T07:47:25-07:00 Renee http://forum.mslog.com/account.php?u=8

Hi...my stepfather was diagnosed with MS about 10 years ago. Over the past year his symptoms have worsened and he is having little or no positive reaction to his medications. He and his doctors ...

http://forum.mslog.com/comments.php?DiscussionID=1&Focus=15#Comment_15 2007-09-25T13:28:07-07:00 2012-05-19T07:47:25-07:00 rleafmslog http://forum.mslog.com/account.php?u=1

Hi Bob, I hope everything is going well for you. It's good to know about retreat dates. I've got them blocked out on my calendar already. I will be defending my MGTHE (Men's Getaway Texas Hold-Em) ...

I hope everything is going well for you.
It's good to know about retreat dates. I've got them blocked out on my calendar already. I will be defending my MGTHE (Men's Getaway Texas Hold-Em) title, so practice your poker guys.
Speaking of poker, we will be playing a game at Ron's in October. Anyone that is interested can shoot me an email.

Jim Ramstad did an outstanding job in congress. My representative is Keith Ellison whose wife has MS, so I am hopeful he will be a good advocate for us as well.

Rick
email]]> http://forum.mslog.com/comments.php?DiscussionID=1&Focus=14#Comment_14 2007-09-25T05:27:02-07:00 2012-05-19T07:47:25-07:00 BobOverturf http://forum.mslog.com/account.php?u=7

Hi Rick, I think you already know me but I wanted to thank you for starting this discussion forum and once again say thank you for coming up with the "It's Only Breakfast" get togethers. ...

I think you already know me but I wanted to thank you for starting this discussion forum and once again say thank you for coming up with the "It's Only Breakfast" get togethers. I'm not sure I will be able to come to the next one (9/29 at Josephs) but you might want to let those in attendance know that the next Men's Retreat will be held February 8th - 10th 2008 at Arrowhead Resort in Alexandria. Information and the opportunity to sign up will come out after November 15th. I got this information from Tim Holtz. It might also be noted (I'm sure most have heard) that Represenative Jim Ramstad has announced his retirement from the U S Congress. I usually do not back Republicans but Jim was a great asset for the MS Society and in fact started an "MS Caucus" in the House of Representatives. That caucus has grown to 37 members and has been responsible for some good legislation about disabilities and money for the NIH>]]> http://forum.mslog.com/comments.php?DiscussionID=2&Focus=10#Comment_10 2007-09-06T14:24:05-07:00 2012-05-19T07:47:25-07:00 rleafmslog http://forum.mslog.com/account.php?u=1

Susan, welcome! I am going to create a care partner discussion category. You can watch for discussions there or even get the ball rolling yourself.

I am going to create a care partner discussion category. You can watch for discussions there or even get the ball rolling yourself.]]> http://forum.mslog.com/comments.php?DiscussionID=2&Focus=9#Comment_9 2007-09-06T12:53:33-07:00 2012-05-19T07:47:25-07:00 Susan http://forum.mslog.com/account.php?u=4

Are there any care giver discussions underway right now?

http://forum.mslog.com/comments.php?DiscussionID=3&Focus=3#Comment_3 2007-08-22T14:22:21-07:00 2012-05-19T07:47:25-07:00 GetOutOfMyWay http://forum.mslog.com/account.php?u=3

Laurie Jerin is driving her power wheelchair 900 miles from Missoula MT to Denver CO on Sept. 7, 2007 to advocate needs of people with MS to cities and towns along her route. You can read details ...

You can read details of this epic journey at her website :

GetOutOfMyWay.org

We are seeking donations and sponsorships to offset the $ 10K costs of this event which has captured local and national attention.
Your donations will help Laurie and others with MS greatly through this unusual event.

Thank you so much !]]> http://forum.mslog.com/comments.php?DiscussionID=2&Focus=2#Comment_2 2007-07-30T15:37:48-07:00 2012-05-19T07:47:25-07:00 rleafmslog http://forum.mslog.com/account.php?u=1

To post you must register. Email is optional. Leave blank if you wish to remain anonymous. After registering you should be able to post immediately. Selelect the category you want to post in. Then ...

Then repeat as desired. :-)]]>